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That's what she said! Erins Dream

That's what she said!

Posted on Sunday, June 06, 2010
Filed Under: Events | 

 Last night I read a speech that I wrote expressing my experience as a caregiver for Avery & Nolan through their cancer battles. Usually I can pull off a speech pretty easily with a few notes, but this time was definitely a READER. It's tough to talk about myself. The stories of Avery & Nolan come easier because I think of them so often & share them regularly. Think about me? Talk about me? Well, that doesn't come so easily. Especially considering myself at the same time as Av & No. They came first in every instant of my life & probably always will, along with little bro Cal.

Thank you. I am honored to share some insight into my personal experience as a caregiver for my cancer angels, Avery & Nolan Megonigal. I live each moment fully aware that I have experienced MANY great losses in my life because of cancer. For tonight, I have accepted this new challenge. Instead of focusing on the pride I hold for Avery & Nolan, I have to take a good look at myself as a caregiver. It is not easy for me & I hope that you too can take a deep breath & realize, along with me, this challenge.

 

Cancer effected every system & part of Avery & Nolan’s body. It has left a mark on mine as well. Let’s start from the bottom, UP!

 

Legs & feet – In the most tense moments, this caregiver has found that pacing back & forth is a natural coping mechanism. If I just keep moving, I can keep going. I can continue to be present in the moment. I will be ready to pounce on the next challenge. As we walk today, can’t you feel the power of movement? The energy pushes you forward, up & over the obstacle, opens your mind to possibilities, opens your heart to hope.

Gut- Having 2 little ones who could not communicate with me, I have become a master of the gut feeling. Some only feel that boulder in the bottom of their stomach once or twice in a lifetime. I lost count a long time ago, but I trust that feeling. I follow it, embrace it & feel thankful that cancer has showed me how important it is to follow my instincts.

Arms & Hands – Holding someone in your arms for the first or last time IS the most beautiful gift.

Heart- It’s broken, but it is still so full. I can feel hope in the most hopeless situations. I care so much and so deeply now. The fact that my heart is still beating amazes me. Even more amazing, it beats louder & stronger when times get tough. All of my greatest memories are stored there, giving me the power to just keep going.

Mind – I believe that Avery & Nolan’s battles with cancer left me, the caregiver, as a more intelligent & saavy person than I ever could have dreamed I could become. I see now, after taking this challenge to finally concentrate on myself for once that I made life-altering, educated decisions in seconds. I communicated with medical professionals on a daily basis using words like Extracorporeal membrane oxygenation, and they listened to my every word.

 

Just like YOU are listening. I have a story, my own story as a Cancer caregiver. Cancer took my greatest gifts, but left me with my super powers. I just have to accept the challenges, like this one, that put them to good use.

 

 

 



Comments
Erin, I listened in awe....such profound losses.  I am in awe also of your stregnth and ability to share your story.  Thank you for being part of our relay this year!
Posted by Rosalie Lisa on Monday, June 07, 2010, 5:30 AM

Erin - this is a very moving, heartfelt and deeply touching speech.

There must have been a huge hush over the crowd as they listened to your words of love for Avery and Nolan, and the realization that you were their champion fighter!

Posted by Joyce on Monday, June 07, 2010, 9:50 PM

Erin,

I don't know if you remember me but I worked with you at BASH. You taught my son Jonathan, (aka: Jonnie)

After reading this blog on cancer caregivers, I felt that I had to write to you.

I have been voting for your dream house since the conest has started. I have been following you website, purchsed items from Haollenbach on behalf of your charity, but most of all I ahve prayed for your family.

I hope that your dream becomes a reality this month.

I wish you all the best.

Sincerely,

Natalie Warren

Posted by Natalie Warren on Friday, June 11, 2010, 10:15 AM

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